Unanswered questions

Do you think there are questions about this disease that are going unanswered, because no one in the medical/scientific community has asked them? Is there information about your experience with ALS that you think might be helpful in research, treatment, etc. that doctors/researchers aren't asking you about?

For example: When my husband saw the neurologist for the first time, the doctor asked him if he works around chemicals. When Larry told him yes, but not directly, there were no follow-up questions like, "How long have you worked in this field?" or when the doc knew Larry had already retired once, he never asked what industry he retired from. No questions about military service, or head trauma. How do they expect to determine a cause if they are not asking any historical questions that are passed along to researches?

Post your question (or idea) here. Once we have a list of questions, I will create a survey, and do my damndest to shove it in the faces of the doctors and researchers. That means, that the more people who participate, the more accurate the data, and the more influence it will have. I will give it 30 days initially before I start compiling the survey, so please spread the word. You don't have to be a member to post, so please think about it and help if you can.