Please don't ignore me

Wow Larry!

I am sure you are not the only one who feels like this. I know my husband and I have become more isolated because of this disease as well, but we have also noticed that others have stepped up too.

IMHO, you are right, their lack of contact is likely their inability to cope with the changes in you.

Take care!

I have noticed since my diagnosis, that some of my longtime friends, don't call or come around anymore. I know it is this damn disease, and them not knowing how to handle seeing what it is doing to me.

In fact, I have to admit I have avoided a friend of mine who fell and broke his back and both ankles. He got a staff infection, and lost a bunch of weight, and had a lot of atrophy due to being in traction. I can't bear to look at him, because I know he will get better, and I will get to look like him and not get better. I have called and talked to him, and finally explained why I haven't been around, because it is not fair to him either, and all is good between us.

I wish the others would at least call and say hi once in a while. This is a very isolating disease as it is, and I need all the friends I can get, even if they are only there for a chat once in a while.